Thank you for your request for information about the following:

I would be grateful if you could furnish me with the following information:

1. Currently, how many beneficiaries are registered with the English Infected Blood Support Scheme?
2. How many of the beneficiaries are in each category? ie. HCV stage 1, 2, SCM, HIV, Co-Infected, Widows/Surviving Spouses.
3. Since July 2017 (when EIBSS went live), and the announcement of the Infected Blood Inquiry, how many victims died? Please specify those within each category (as per Question 2)?
4. What is the current known number of Haemophiliac beneficiaries registered with EIBSS?
5. What categories do the Haemophiliacs fall under? i.e. HCV stage 1, 2, SCM, HIV, Co-Infected, Widows/Surviving Spouses.
6. How many beneficiaries are registered with EIBSS that fall under blood transfusion (non-Haemophiliac) as their route of infection? And which categories do they fall under?
7. How many EIBSS applications have been rejected at the first stage?
8. How many EIBSS applications were accepted or rejected after the Independent Appeals Panel stage?
9. How many EIBSS Applications have been rejected or accepted following a Judicial Review ruling? (Either as a result of a successful JR, or after an appeal was rejected but before a Judicial Review was brought).
10. How many applications have been referred to Hill Dickinson LLP?

Your request was received on 4th May, and I am dealing with it under the terms of the Freedom of Information Act 2000.

Response

All data as of 15th May 2023.

Question 1

There are 3,568 beneficiaries registered with the EIBSS.

Question 2

The current data within each category is as follows:

Hep. C Stage 1: 1352
Special Category Mechanism: 554
Hep. C Stage 2: 559
HIV: 65
Co-Infected (HIV and SCM): 85
Co-Infected (HIV and Stage 1): 81
Co-Infected (HIV and Stage 2): 56
Carers / Dependants: 93
Widow widower civil partner: 723

Total: 3568

Question 3

The Infected Blood Inquiry was announced in July 2017 (as per IBI website timeline), and EIBSS went live in November 2017. Since November 2017, 429 victims have died.

Hepatitis C Stage 1: 141
Special Category Mechanism: 35
Hep. C Stage 2: 173
HIV: 2
Co-Infected (HIV and SCM): 5
Co-Infected (HIV and Stage 1): 9
Co-Infected (HIV and Stage 2): 12
Carers / Dependants: 0
Widow widower civil partner: 45
Secondary Infectee: 6
Estate: 1

Total: 429

Questions 4, 5, 6:

Following a search of our paper and electronic records, I have established that this information is not held by the NHS Business Services Authority. As a result of the GDPR Principle: Data Minimisation, EIBSS ensures only the minimum relevant and necessary personal data is retained and processed to enable accurate support payments to be made on time.

Question 7

591 applications have been rejected at the first stage, relating to 551 individual applicants

Question 8

Following an Independent Appeals Panel:

• 14 applications relating to 14 individuals were approved
• 157 applications relating to 150 individuals were declined

Question 9

No EIBSS Applications have been rejected or accepted following a Judicial Review ruling

Question 10

7 applications have been referred to Hill Dickinson LLP

Data Queries

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